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Would you participate in a research study, if you had a rare medical condition?
I have a rare condition. I want to know more about it. There at this time is not a known cause, although there are treatment.
They just want to draw lab samples and do test. They will compensate me like $200 is it worth it.
I probably can get the same results from my dr, except I will have to pay and would not be compensated.
The fact is that too few people participate in clinical trials - you have the ability to help people who suffer the same disorder as you have in a way that you might not be able to imagine.....
The fact that you have the ability to participate (most people are never exposed to the opprotunity) alone is a very good thing. Your participation might mean that someday there will be better and more effective treatments and tests for your condition.
Its not about the money....just do it, please, on behalf of those who might benefit from it in days to come.
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